Dr Maggie Ellis is a Senior Lecturer in Psychology at the School of Psychology & Neuroscience, University of St Andrews where she develops teaching, training and consultancy in dementia care, based on her own research. Maggie has been working with and researching the lives and experiences of people with dementia, their family members and professional caregivers for twenty years. Her research portfolio includes the development of positive interventions to support people to live well with dementia and to maintain and create relationships. Maggie’s main research focus is on identifying and utilising the spared communication skills in people at very advanced stages of dementia. As such, she worked with collaborator Professor Arlene Astell, to develop Adaptive Interaction, a method of supporting meaningful communication between caregivers and people with very advanced dementia. Adaptive Interaction is a nonverbal technique that supports the building of interpersonal connections and relationships using movements, sounds and eye gaze. This work has generated much interest in the fields of both dementia research and care. Maggie has received personal invitations from the editors of the Journal of Dementia Care and the Journal of Counselling and Healthcare to write articles on this research. She has also given invited talks to multidisciplinary audiences from Dublin to Toronto. She has recently co-authored a book on Adaptive Interaction.
Leeroy is the Clinical Director of a Palliative Medicine Service in Australia, who grew up and trained in East London, moving to Dorset for his postgraduate medical training. He has been working in palliative care since 2003, beginning in Lymington (UK), then New Plymouth and Auckland (New Zealand), before settling in Melbourne. Leeroy has developed leadership roles in clinical, educational and research activities and is the current President of the Australian & New Zealand Society of Palliative Medicine.
He has been a Clinical Lead for Schwartz Rounds and has an interest in cancer pain, health professional education, transitions in palliative care, communication skills, and holistic inter-professional care. His passion for improving the knowledge about palliative care has led to development and management of the Facebook page, “Palliative Medicine Teaching” which developed from medical student teaching in 2012.
Healthcare and society have an important role in supporting people and their families during life-threatening illness. The transition from living with an illness to dying from it affects people in different ways. It becomes even more important that we listen to understand and recognise where we can support people and their social networks.
For these reasons, Leeroy remains dedicated to promoting compassionate healthcare and communities.
Angela is a Consultant Haematologist in the United Kingdom.
She has been in her current post for 18 years. She trained in South London and Surrey and is originally from London. In her current post, Angela treats patients with the full range of haematological diseases, both benign and malignant. Many of these conditions are chronic and, as a result, she has known some of her patients and their families for almost 18 years too. She is passionate about the care of patients with haematological cancer, from the start of their cancer journey to the end. She believes in treating the whole patient as an individual and not just the disease.
Death is a part of this journey and we are fortunately much more open in our discussions about death today than in her early medical career and sees this as a great advance in managing patients and their families. Equally, for those patients fortunate to have been successfully treated, survivorship and getting back to a healthy life is key to a full recovery both physically and mentally.
She loves the countryside, travel, running and yoga and is shortly embarking on Yoga Teacher Training, which she hopes to bring to cancer patients in the NHS in the future.
With over 40 years in the Rail transport industry, starting as a Trainee Train Driver, then a Train Driver, then an Instructor Driver, Driver Manager, before becoming the Train Operator Interface Manager for Network Rail. His final position was as Rail Compliance Manager at Mersey travel. Tommy is now a Director of thredCiC Community interest Company.
After being misdiagnosed with bipolar, he was finally diagnosed with early onset Alzheimer’s in December 2011. Since his diagnosis he's been: Chair of the Service Users Reference Forum (SURF) Board member of the Nation Dementia Action Alliance (DAA) Member of the 3 Nations Dementia Working Group (3NDWG) A member of Everton pass on the memories group and he is also Vice Chair of the Liverpool DAA Transport Group.
In 2013 he won at the NHS Positively Awards the Recovery Champion and the Winner of Winners award. In 2014 he won the Innovate Dementia Award and he was awarded British Empire Medal June 2016 for work for People living with Dementia.
His goal in life is to help his Peers and their family Carers understand that you can still live a happy and productive life after a diagnoses and to take the fear and stigma out of dementia.
Roberta (Robi) is the Head of Quality of Life at HC-One, one of the largest health and social care providers in the UK. She has 20 years’ experience within operational and quality related roles in the sector. Robi studied economic history and psychology in Italy and relocated to the UK in 2003 to set up an advocacy project for people with profound disabilities, which received formal recognition from HRH the Countess of Wessex for empowering people with profound disabilities to have a voice in decisions relating to their lives and the care that they receive.
She has committed her career to promoting personalised care and advocates for people receiving care to be recognised as individuals and to have control over the choices regarding their care and quality of life.
She is extremely passionate about value-based technology that can drive better outcomes for people receiving care.
Olga is a death educator, certified in Thanatology, the study of death, dying, loss and grief. She is a dying well advocate, nurse educator, cannabis educator and grief counselor with over 25 years of professional experience as a registered nurse in various health care settings, including hospice palliative care. Her educational history includes a degree in Anthropology and Psychology, a Master’s degree in Religion and Culture, an interdisciplinary certificate in palliative care, along with her recent Cannabis Science certificate. Olga has been involved in national, provincial and local efforts to shift the way we view and approach our dying experience, death and grief, including how we care for each other at the end of life. She served as one of the founding faculty members for the Virtual School for Community Deathcare in Canada and is currently facilitating on-line Thanatology program courses through Centennial College, and the on-line End of Life Doula course through Douglas College across Canada.
Olga is also the founder and director of DyingMatters.ca a Death Education social enterprise and is the founder and current administrator of the Death Doula Ontario Network.
Having worked in ministry for over 20 years and now specialising as a Chaplain in older persons care, Ashley is a passionate advocate for Spiritual, Pastoral and End of Life Care within healthcare settings. He now oversees the Spiritual and Pastoral needs of the Luxury Care Group (service users and staff), the delivery and maintenance of the end of life pathway within the company along with many other responsibilities.
Holding qualifications in many areas including, Community Chaplaincy, Grief and Bereavement Counselling, End of Life Care, Spiritual Care, activities planning along with being a qualified Soul Midwife and a Mental Health First aider he works hard on ensuring that people get the best support available. He is member of The Collage of Healthcare Chaplains and in 2020 was made a Fellow at the Society of Bereavement Practitioners for his dedication and commitment to the work of End of Life Ministry.
Ru is the CEO of Saint Elizabeth Hospice.
He's a senior executive with extensive experience in leadership and transformational change in both private and public sectors, who enjoys making a difference. Demonstrable success in delivering innovation and programmes in both UK and overseas in many sectors including, Defence, Health, Charity and Telecommunications.
Chris has spent most of his career as a software developer and Interim Chief Information Officer, working with executive boards in various sectors covering Education, Law and Retail, but most notably in Education, where he was instrumental in defining and leading IT strategy for 30 Academies. Chris is himself approaching end of life, and has direct and current experience of the emotional and physical aspects of this situation. He is passionate about the use of technology to assist all of us in life’s journey, and particularly as we approach end of life.
Jane is the founder of Before I GO Solutions and believes passionately that society needs to be more open about grief, death and dying. She's the author of Before I Go, a leading coach and TEDx speaker. Additionally, Jane has also helped thousands of people around the world to transform their lives. She is passionate about helping individuals to plan for their end of life, whenever that is.
Helen has worked in nursing for over 30 years, specializing in hospice and end of life care for the past 10 years. She is a Certified Hospice and Palliative Care Registered Nurse with a background in compliance and consulting. As co-owner of The Heart of Hospice, she provides end of life education and consulting services for both hospice providers and consumers. Helen’s passion for quality end of life care can be heard on The Heart of Hospice podcast as she leads discussions on hospice philosophy, how to get the most from your hospice experience, and advance care planning.
Jo is an experienced clinical social worker, currently working at a specialist palliative care unit in Melbourne, Australia. She holds postgraduate qualifications in bereavement counselling and has recently taken up a leadership role with Palliative Care Social Work Australia. This leading organisation represents social workers with experience and interest in palliative, end-of-life and bereavement care.
Jo is passionate about the provision of holistic, interdisciplinary, collaborative and compassionate healthcare for all.
After 30 years of ministry as a pastor for churches, Jerry began a new career as a hospice chaplain in 2010 and felt that he had found his true home in serving people on their end of life journey. Jerry serves as the System Director of Spiritual Counselors for Harbor Healthcare System, a multi-site hospice agency. Jerry is also the co-owner of The Heart of Hospice podcast and uses that platform to encourage and educate hospice professionals. In 2018 Jerry was selected to serve as a member of the Palliative Care Interdisciplinary Advisory Council for the Texas Health and Human Services Commission. It’s his passion to use each of these roles to help improve the quality of life for every person needing hospice and palliative care.
Anna is the founder of WHIB Ltd.
After spending many years as a nurse working in intensive care, high dependency and transplant, she changed direction to focus on workplaces. She has spent the last 20 years advising business leaders, managers and employees on work related health and well-being initiatives. Her driving passion is to enable people to live happy, healthy and fulfilled lives.
Alex is a bereavement and loss specialist; she has worked with families facing death of a loved one and bereaved for over 35 years. Her background in counselling support, Critical incident and Human Aspects Training, has led her to her current role as programme advisor for television and trainer support for Journalists working within a sensitive or highly charged emotional environment.
She is also a published Author & Agony Aunt having written for several publications and spoken on national and local radio.
Lisa is Co-founder Dementia Support Services and is an experienced senior Occupational Therapist. She has gained a wealth of experience working within the National Health Service, Social Services and Private Sector. Part of her role involves post diagnostic counselling and is a trained Dementia Care Mapper, an observational tool which identifies the level of well-being in people living with any form of dementia .